Registry · GLP-1 and metabolic health
Understand what keeps
people on it.
Your trials proved it works. This registry shows you how it lives: what people tried first, how month four actually felt, and what keeps them going. They wrote it down as it happened.
Enrolment is open. Consented at source, de-identified, and coded on arrival.
Patient entry · day 9
“Really queasy since I moved up to 1 mg, and I cannot face food in the mornings.”
Linked to the record
MedDRA LLT
Nausea
- Onset
- After the dose change
- Pattern
- Worse in the mornings
- Severity, patient-reported
- Moderate
Verbatim, retained
“really queasy, cannot face food in the mornings”
Onset day 9 · resolved day 14
Why this registry
Real users bring a whole life with them.
Comorbidities, four other medications, brands they switched between, and the stretches they paused and came back. All of it sits alongside the weight and the labs, in one continuous history.
A gap in the fill history. And the reason behind it, in their words.
What we capture
Everything a persistence
question needs.
Weight, HbA1c, lipids and blood pressure from their own records. Dose and titration history. Why they started and why they stopped. Side effects and what they did about them. Comorbidity burden and everything else they take.
The stopping reason
Nausea, cost, coverage lapsing, a pharmacy that ran out, or they simply felt done. You get which, and when.
What came before
The metformin years, the diet programmes, the bariatric consult they didn’t go through with. Their history came with them.
Side effects, graded
Severity as the person reported it, with a MedDRA LLT code and the sentence they wrote still attached.
Off-label and compounded
People tell their own record things they don’t tell a prescriber. That includes what they bought elsewhere.
Where it shows up
Five places this lands inside your company.
Payer and formulary strategy. Label expansion. Commercial positioning against the brand people switch to. Postmarket surveillance. And medical education built on what patients actually report.
We ask, they answer
You mentioned the fatigue got worse after cycle three. Did anything change that week?
I started the new anti-nausea tablet on the Tuesday.
Where it stands today
Enrolment is open and growing every week.
We publish enrolment and follow-up numbers as they become real. In the meantime we will show you exactly where the registry stands, so you can judge the fit yourself.
Care Journal Archive
Query the history that exists.
- Structured fields plus the notes behind them
- Cohort-matched to your inclusion criteria
- De-duplicated across systems, so one person counts once
- De-identified and analysis-ready in days
Care Journal Cohort
Recruit the cohort and follow it.
- Recruit and consent the exact population you need
- Your own ePROs, on your schedule
- Prospective follow-up, month after month
- Dashboards while it runs, exports when you need them
Participants see who you are before they agree, can withdraw whenever they like, and their consent expires after a year unless they renew it.
Questions we get
What people ask us first.
Ask us anything, including the hard ones. We answer those the same way.
What makes this different from the RWD vendors we already use?
Ours comes straight from the person it belongs to, who went and collected it because they wanted it. That is what gives it the reach, and why the parts a claim never sees are sitting in it.
Where does the data actually come from?
People use Care Journal for their own reasons. It pulls their records in from the clinics they’ve been to, and they add what’s missing. Later, separately, they can choose to let a de-identified copy go into research.
Will the consent survive a diligence review?
Consented at source, per study, with you named before anyone agrees. People can withdraw whenever they like and it renews yearly by choice. Every record traces back to the moment its owner said yes.
How big is the cohort?
Growing every week. We’re early, and we would rather show you precisely where it stands today and let you judge whether it carries your question.
Do we get the notes, or just structured fields?
Both. Diagnoses, labs, meds, vitals and payer detail, plus the clinical notes, pathology and discharge summaries parsed. And what the person wrote themselves between appointments, kept verbatim.
Who uses this inside a company like ours?
Medical Affairs, RWE and HEOR, Market Access, Commercial Strategy and R&D. Usually it starts with one team’s question and the file ends up getting passed around.
Send us your inclusion criteria.
We’ll run them and show you exactly what comes back, so you can judge the fit yourself.