Registry · Addiction and recovery
See recovery as it
actually happens.
Recovery is lived between appointments, and that is where this registry looks. Cravings, sleep, mood and the days that went well, logged as they happen by the people living them.
Enrolment is open. Consented at source, de-identified, and coded on arrival.
Patient entry · day 9
“Really queasy since I moved up to 1 mg, and I cannot face food in the mornings.”
Linked to the record
MedDRA LLT
Nausea
- Onset
- After the dose change
- Pattern
- Worse in the mornings
- Severity, patient-reported
- Moderate
Verbatim, retained
“really queasy, cannot face food in the mornings”
Onset day 9 · resolved day 14
Why this registry
Recovery is won in the weeks between visits.
People move between programmes, providers and states, and their record travels with them. Every episode of care lands in one history, including the ones they paid for themselves.
What we capture
The weeks between
appointments.
Medication-assisted treatment and dose history. Cravings, sleep, mood and withdrawal as they happen. Prior attempts and what ended them. Comorbid pain and mental health. Every provider and programme they’ve been through.
Where it shows up
Five places this lands inside your company.
Retention and relapse. Programme comparison. Payer and coverage strategy. Postmarket surveillance for medication-assisted treatment. And medical education built on what people actually report.
We ask, they answer
You mentioned the fatigue got worse after cycle three. Did anything change that week?
I started the new anti-nausea tablet on the Tuesday.
Where it stands today
Enrolment is open and growing every week.
We publish enrolment and follow-up numbers as they become real. In the meantime we will show you exactly where the registry stands, so you can judge the fit yourself.
Care Journal Archive
Query the history that exists.
- Structured fields plus the notes behind them
- Cohort-matched to your inclusion criteria
- De-duplicated across systems, so one person counts once
- De-identified and analysis-ready in days
Care Journal Cohort
Recruit the cohort and follow it.
- Recruit and consent the exact population you need
- Your own ePROs, on your schedule
- Prospective follow-up, month after month
- Dashboards while it runs, exports when you need them
Participants see who you are before they agree, can withdraw whenever they like, and their consent expires after a year unless they renew it.
Questions we get
What people ask us first.
Ask us anything, including the hard ones. We answer those the same way.
What makes this different from the RWD vendors we already use?
Ours comes straight from the person it belongs to, who went and collected it because they wanted it. That is what gives it the reach, and why the parts a claim never sees are sitting in it.
Where does the data actually come from?
People use Care Journal for their own reasons. It pulls their records in from the clinics they’ve been to, and they add what’s missing. Later, separately, they can choose to let a de-identified copy go into research.
Will the consent survive a diligence review?
Consented at source, per study, with you named before anyone agrees. People can withdraw whenever they like and it renews yearly by choice. Every record traces back to the moment its owner said yes.
How big is the cohort?
Growing every week. We’re early, and we would rather show you precisely where it stands today and let you judge whether it carries your question.
Do we get the notes, or just structured fields?
Both. Diagnoses, labs, meds, vitals and payer detail, plus the clinical notes, pathology and discharge summaries parsed. And what the person wrote themselves between appointments, kept verbatim.
Who uses this inside a company like ours?
Medical Affairs, RWE and HEOR, Market Access, Commercial Strategy and R&D. Usually it starts with one team’s question and the file ends up getting passed around.
Get the first readout.
Tell us the question you need answered about retention or relapse, and we’ll come back to you when the registry can answer it.